apabruce Posted November 25, 2021 Share Posted November 25, 2021 I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. Quote Link to comment Share on other sites More sharing options...
gehringer_2 Posted November 25, 2021 Share Posted November 25, 2021 26 minutes ago, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. Never a good time of year to hear that. Godspeed to you both. Quote Link to comment Share on other sites More sharing options...
CMRivdogs Posted November 25, 2021 Share Posted November 25, 2021 59 minutes ago, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. Sending good thoughts Quote Link to comment Share on other sites More sharing options...
Crazy Cat Gentleman Posted November 25, 2021 Share Posted November 25, 2021 5 hours ago, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. I'm sending good thoughts as well. Take care. Quote Link to comment Share on other sites More sharing options...
smr-nj Posted November 26, 2021 Share Posted November 26, 2021 23 hours ago, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. My prayers to you both. Hang in there. Quote Link to comment Share on other sites More sharing options...
Kacie Posted November 26, 2021 Share Posted November 26, 2021 23 hours ago, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. So sorry. You will get through it. Lymphoma is very treatable in most cases. If I may, I highly, HIGHLY recommend you make sure you see a LYMPHOMA specialist once you get the specifics. You're right, may variations, Hodgkins, Non Hodgkins, B-Cell, T-Cell, Large cell, small cell, diffuse, non diffuse. You'll become a pro in no time! Take good care of yourself, too. Quote Link to comment Share on other sites More sharing options...
apabruce Posted November 27, 2021 Share Posted November 27, 2021 I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. I will know more next month. In the meantime, thanks for the kind words. Quote Link to comment Share on other sites More sharing options...
Tigeraholic1 Posted November 30, 2021 Share Posted November 30, 2021 On 11/27/2021 at 5:05 PM, apabruce said: I guess this is the cancer thread. My wife got diagnosed with lymphoma this week. She has her first appointment with the hematologist on December 17th. Apparently, there are lots of variations of lymphoma. They all terrify me. I will know more next month. In the meantime, thanks for the kind words. That's awful to hear.... Prayers that she will get encouraging information from the doctor. Quote Link to comment Share on other sites More sharing options...
apabruce Posted January 20, 2022 Share Posted January 20, 2022 On 11/26/2021 at 9:19 AM, Kacie said: So sorry. You will get through it. Lymphoma is very treatable in most cases. If I may, I highly, HIGHLY recommend you make sure you see a LYMPHOMA specialist once you get the specifics. You're right, may variations, Hodgkins, Non Hodgkins, B-Cell, T-Cell, Large cell, small cell, diffuse, non diffuse. You'll become a pro in no time! Take good care of yourself, too. Indeed. chemo starts next week. It's an IV and is scheduled to last 6-8 hours. She is 78, so 8 hours of anything can be taxing. Quote Link to comment Share on other sites More sharing options...
smr-nj Posted January 21, 2022 Share Posted January 21, 2022 44 minutes ago, apabruce said: Indeed. chemo starts next week. It's an IV and is scheduled to last 6-8 hours. She is 78, so 8 hours of anything can be taxing. We’ll be thinking of you both, Bruce. Let us know how she’s doing. Quote Link to comment Share on other sites More sharing options...
apabruce Posted January 27, 2022 Share Posted January 27, 2022 She had her first chemo sessions Tuesday and Wednesday. She spent about 6 hours each day in a cheap recliner getting a drip bag of a designer drug. Other than boredom and night sweats, she has had no side effects yet. She will now start getting sessions once a week for several months. Quote Link to comment Share on other sites More sharing options...
oblong Posted January 27, 2022 Share Posted January 27, 2022 Wishing all the best. Quote Link to comment Share on other sites More sharing options...
romad1 Posted January 28, 2022 Share Posted January 28, 2022 Reading about 8 hour sessions...I realize why my sister was always available on Facebook when she went through that. Boredom. Quote Link to comment Share on other sites More sharing options...
Tigeraholic1 Posted January 28, 2022 Share Posted January 28, 2022 My Dad is going through chemo right now as well. He has had minor side affects. They do a good job of balancing doses to keep folks feeling better. Prayers for your wife… 1 Quote Link to comment Share on other sites More sharing options...
apabruce Posted January 28, 2022 Share Posted January 28, 2022 1 hour ago, Tigeraholic1 said: My Dad is going through chemo right now as well. He has had minor side affects. They do a good job of balancing doses to keep folks feeling better. Prayers for your wife… Sorry to hear about your dad. Quote Link to comment Share on other sites More sharing options...
Tigeraholic1 Posted January 28, 2022 Share Posted January 28, 2022 8 minutes ago, apabruce said: Sorry to hear about your dad. Thanks, he is a Vietnam Vet. Agent Orange is catching up to him. He now has Parkinson’s, beat Prostate cancer but now is battling non-hodgkin's lymphoma. Quote Link to comment Share on other sites More sharing options...
smr-nj Posted January 28, 2022 Share Posted January 28, 2022 On 1/27/2022 at 4:42 PM, apabruce said: She had her first chemo sessions Tuesday and Wednesday. She spent about 6 hours each day in a cheap recliner getting a drip bag of a designer drug. Other than boredom and night sweats, she has had no side effects yet. She will now start getting sessions once a week for several months. Praying for her 1 Quote Link to comment Share on other sites More sharing options...
smr-nj Posted January 28, 2022 Share Posted January 28, 2022 18 hours ago, Tigeraholic1 said: Thanks, he is a Vietnam Vet. Agent Orange is catching up to him. He now has Parkinson’s, beat Prostate cancer but now is battling non-hodgkin's lymphoma. Praying for him, as well. 2 Quote Link to comment Share on other sites More sharing options...
apabruce Posted January 29, 2022 Share Posted January 29, 2022 There is one side effect I forgot to mention..diarrhea. Very annoying. Quote Link to comment Share on other sites More sharing options...
CMRivdogs Posted January 29, 2022 Share Posted January 29, 2022 (edited) 4 minutes ago, apabruce said: There is one side effect I forgot to mention..diarrhea. Very annoying. I'm beginning to think every medicine has that side effect. Especially the level 5 experimental drugs Edited January 29, 2022 by CMRivdogs Quote Link to comment Share on other sites More sharing options...
apabruce Posted January 31, 2022 Share Posted January 31, 2022 Also common are drugs that cause constipation. My wife is now taking 4 different prescription drugs to help with side effects. Quote Link to comment Share on other sites More sharing options...
apabruce Posted February 19, 2022 Share Posted February 19, 2022 The drugs being used for my wife's chemo are GAZYVA for the IV and VENCLEXTA for the pills [who names this stuff?] No bill has been submitted yet. Under Medicare part A, her maximum out of pocket is $4,500, so I am expecting something like that. The actual pills are expensive, but I am told we can get reimbursement for up to $9K. She asked when she started if her hair would fall out and they told her "probably not." Well, her hair is falling out, if what we see in the shower drain is a precursor. She is not a happy camper about that. Quote Link to comment Share on other sites More sharing options...
CMRivdogs Posted February 19, 2022 Share Posted February 19, 2022 1 hour ago, apabruce said: The drugs being used for my wife's chemo are GAZYVA for the IV and VENCLEXTA for the pills [who names this stuff?] No bill has been submitted yet. Under Medicare part A, her maximum out of pocket is $4,500, so I am expecting something like that. The actual pills are expensive, but I am told we can get reimbursement for up to $9K. She asked when she started if her hair would fall out and they told her "probably not." Well, her hair is falling out, if what we see in the shower drain is a precursor. She is not a happy camper about that. I've been diagnosed with ILD (Interstitial Lung Disease). We suspect I've had it for a while. They've prescribed Cofev. Medicare doesn't pay until I meet the deductible. Then it pays something like 75% Since it's considered experimental, out of pocket is still fairly steep. Quote Link to comment Share on other sites More sharing options...
apabruce Posted February 19, 2022 Share Posted February 19, 2022 I had to look up Interstitial Lung Disease. Wishing you well. Quote Link to comment Share on other sites More sharing options...
apabruce Posted May 5, 2022 Share Posted May 5, 2022 An update on my wife's lymphoma and chemo- My post about her losing her hair was a false alarm. So far, she's good. We've reached our $4,500 maximum, so we should be done with that. for the rest of the year. I got my Moderna shot number 4 last week. My wife got a shot of Evosheld. This is designed for people with compromised immune systems. Instead of stimulating the body's immune system to produce antibodies, it just injects antibodies. There were several other people in this thread whose family members were involved in chemo. I'd like to hear how you're doing. 3 Quote Link to comment Share on other sites More sharing options...
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